At the very beginning of 2011, I set 11 goals, and then at the end of 2011, I reviewed them. My "report card" wasn't awful :) And if you read that last post-- I just want you to know that we finished the office and got to the Children's Museum last year and we have plans to celebrate in Vegas again. I "promised" to set some goals for 2012-- well my direct quote was "Mine (2012 goals) will be scaled back and just shy of 'survive the first year', but I still have some things I want to check off!" Turns out "scaled back" means never even written down. And, regardless, no one saw-- "research everything you know about Craniosynstosis and go to one million appointments and spend half the summer recovering your kid from skull surgery" coming. So, I'm kinda glad I didn't set out a bunch of ambitious goals to conquer in 2012. They likely wouldn't have gotten done anyway.
In hindsight, and this is so limited and off the top of my head, 2012 did bring some great things.
* We did, in fact, survive the first year of Tucker's life. I feel like taking care of babies must be harder for me than other women. I have come to accept that. That being said-- the first birthday is a nice milestone for Dave and me. Normal sleep-deprived, demanding, teething baby stuff plus surgery was hard on our marriage and on us personally-- but we survived just fine. We love Tucker so gal-darn much, and I can certainly say this year was good for our faith.
* I joined Farrells in May (Happy Mothers Day to me-- you get to like yourself again!) and have kept my long-term commitment of staying active at minimum 4 days a week. I have not noticed a big physical change, but I have noticed a huge mental change. I have learned that working out is an incredible stress reliever for me. It is exactly what I need to take care of myself in a way that frees up mental love and energy and patience for my family. I feel stronger, more confident, and less like a hot-mess and I truly enjoy the workouts and people at the gym. I would say my mental health is about as good as it has been since I had kids! (Did you know that one 45 minute cardio workout has the same hormonal effect as one antidepressant Zoloft?) Plus, I know it is great for my overall and long-term health. And I have gotten to the point where I miss it, and notice it, when I don't go. I wish I would have lost more weight, but I am coming to terms with the reality that we "lose weight in the kitchen and get fit in the gym." I credit keeping my cool this last year and even enjoying my summer to Farrells. (And yes, I get a referral bonus.)
* I preached on Mother's Day-- something I love to do. I hope someday in my life I get to do more public speaking.
I'm sure there are more. Like, tons more. But for the sake of the fussy baby at my feet, I will stop there and move on to the few goals I have for 2013.
1. Write an official will. I need my friend Natalie's help on this one. Natalie, put on your lawyer hat and help me and anyone reading this-- do I write a will? Does a lawyer? Do I need a lawyer? Why do I need a will if my life is fairly 'uncomplicated'? What is a fair price to pay? Is there some template I fill out? How do I get started? Anyway, I add this goal because I once served a client who was my age and had lost her husband to a freak accident. They had a house and a kid-- no divorce, everything jointly-- and she said their lack of a will was really making her life more complicated then needed at the time, and she really encouraged me to write one. Well, some clients you just never forget. Also, I feel like everyone needs a lawyer and a prescription- writing medical professional as friends. So thankful I have both.
2. Do a little emergency preparedness. To not sound like a crazy, I would like to start a little tote or duffel bag or shelf designated for an emergency. For more on the book I read, which really got me thinking about this in a practical way-- check out the old blog post here (specifically #4).
3. Redo my living room. It is a little dated, and heaven knows I spend a lot of time in these four walls. I am pretty tired of the brown walls/brown furniture combo. And since paint is cheaper than furniture, I think this means some new paint and accessories, and a carpet cleaning which I have already scheduled. You all know how much I love Legacy Carpet Cleaning. Maybe I could have a piece of furniture recovered--- ohhh that is something to think about. Any referrals? Is that uber expensive? Maybe just a new accent piece. Oh this is getting more expensive as I type. Anyway, I keep thinking that while the room is cleared for the carpet is the perfect time to paint (because it is)-- and the carpets are scheduled for early January because I can't stand it any longer-- so I need to get Kim Hazlip out here and pick some paint and at least get the living room walls done. The stairwell will be a big task, but we could technically do that after we put the furniture back in. I do know a great paint-guy. Maybe I should just call him :) He could probably do in a morning what would take me three weeks. Anyway, I'm so excited to do this.
4. Get a pool pass, love it and use it. Last summer, I still had a morning napper and two afternoon nappers (and an incision that couldn't get immersed), so we got a little blow up pool and used our "pool money" for a new sandbox out back. But this summer, I will be down to "just" afternoon naps. I have a few friends that use outdoor pools at a gym, which typically open much earlier than public pools-- and love the idea of a 9AM-1PM stretch at the pool. They say it is less crowded, you can eat on the go, and then come home for rest time. I am so IN. Last summer I was hating my body. So when I joined Farrells I told myself that "I will do whatever it takes to NOT stay in all next summer simply because I hate myself in a swim suit. That is not fair to my kids." So, I think I need to keep going to the gym and probably lose a little weight, maybe jump on the Isagenix bandwagon. Last year I bought a swimsuit on clearance that I still really like. I am also working with my doctor to get the red bumps off my arms. And I might tan. Or spray tan until I get a real tan. Look out Prairie Life :)
5. Maybe try something radically different with my hair. I feel like I have had the same style since 8th grade (because I have). My sweet hair lady is trying to talk me into a massive inverted bob this summer. She said it would still "mostly" go into a ponytail and that we would need to really highlight it. It looks cute on Pinterest :)
6. Spend some quality time with Dave. We are going back to Vegas in February to celebrate my 30th birthday (15 months late) with some of our Besties. And I got him a hot air balloon ride for Christmas. And we would just love to schedule a regular sitter, or at least intentionally get out more-- to dinner, or a movie, or Starbucks and a walk after bedtimes for goodness sake.
7. Memorize more scripture.
That's it. At least this year they got written down! How about you? Do you have any goals that you need to write down? Thanks for listening to mine!
On the journey,
Mae
Saturday, December 29, 2012
Monday, October 22, 2012
the unDisciplined life
Have I mentioned how much I love my Monday/Wednesday mornings? Allow me to feel just a little guilty that I drop Dekker off at preschool, then come home in time for Tucker's morning nap. Then, I turn my iPod on, which I recently updated for the first time since 2010, and do "other things"-- like Bible study, cleaning the kitchen in peace, laundry-- and sometimes I institute a "30 minutes of quiet" time. Meaning I sit quietly for 30 minutes with no TV, music, phone, etc. (Dekker rarely naps in the afternoons on the days I am at home with him, so I am learning to cherish that 30 minutes.) Anyway, I do sometimes feel guilty that Dekker is gone on my mornings "off"-- but I'm over it because he LOVES preschool and I am confident that I am doing the best thing for him. All of this to say that I am reading through a Bible study, and the recent topic has really been good for me. The title is "The unDisciplined life."
As I have read through these passages, I have been thinking about three things in the back of my head: My nutrition, My prayer life, My language/gossip/building others up. The text has helped me shape each of these areas as a spiritual battle between what I want (my flesh) and what I know to be the best answer (the Spirit). I am reminded in scripture that I am only human to sometimes give into "the flesh"-- but that doing so consistently has consequences.
Here is a little bit of what has stuck out to me:
* God can change every lack of discipline in our lives and be the strength we have not known but always needed.
* Our ONLY RESCUE from the war in our flesh comes from God through Jesus Christ. Jesus is our only answer!
* God is bigger than whatever we've given control of our lives. He can change our nature and take control of our compulsions.
* I want to live fully engaged. Learning to listen to the prompting of the Holy Spirit, and then obeying God with ALL of my heart.
* Becoming a more disciplined woman is a process and will require training.
* God allows my lack of discipline because it keeps me running to Him and relying on His strength. A holy-dependence is a step toward life-long growth. We must maintain an intimate, consistent dependence on the Spirit of God inside us.
* The fruit of an undisciplined life looks a lot like the life of the lazy-- and that path leads to a dead end.
* When we allow ourselves to indulge we also set ourselves up for the consequences (they are inevitable).
* People engage in undisciplined behaviors because they don't like themselves. (Interesting.)
* The Holy Spirit gives strength to weary bodies and discouraged hearts.
* Luckily and thankfully, God works through weary women all the time.
and finally...
*
As I have read through these passages, I have been thinking about three things in the back of my head: My nutrition, My prayer life, My language/gossip/building others up. The text has helped me shape each of these areas as a spiritual battle between what I want (my flesh) and what I know to be the best answer (the Spirit). I am reminded in scripture that I am only human to sometimes give into "the flesh"-- but that doing so consistently has consequences.
Here is a little bit of what has stuck out to me:
* God can change every lack of discipline in our lives and be the strength we have not known but always needed.
* Our ONLY RESCUE from the war in our flesh comes from God through Jesus Christ. Jesus is our only answer!
* God is bigger than whatever we've given control of our lives. He can change our nature and take control of our compulsions.
* I want to live fully engaged. Learning to listen to the prompting of the Holy Spirit, and then obeying God with ALL of my heart.
* Becoming a more disciplined woman is a process and will require training.
* God allows my lack of discipline because it keeps me running to Him and relying on His strength. A holy-dependence is a step toward life-long growth. We must maintain an intimate, consistent dependence on the Spirit of God inside us.
* The fruit of an undisciplined life looks a lot like the life of the lazy-- and that path leads to a dead end.
* When we allow ourselves to indulge we also set ourselves up for the consequences (they are inevitable).
* People engage in undisciplined behaviors because they don't like themselves. (Interesting.)
* The Holy Spirit gives strength to weary bodies and discouraged hearts.
* Luckily and thankfully, God works through weary women all the time.
and finally...
*
Saturday, September 22, 2012
Random Ramblings
Since I haven't posted for awhile, and since I seem to work best in 10 minute spurts-- I decided to post a few pictures and just give a brief little update on a few things we have been up to.
To begin...our sweet baby boy is nearing the ONE year mark, and weighs as much as an average 2 year old and is in 24 month clothes. He is recovering tremendously-- so much so that I don't even call what he is doing "recovery" anymore. He is just crawling all around and getting into everything. He loves electric cords and outlets and the Carbon Monoxide detector. I am so proud of Dekker-- he is a great Big brother. He is learning to share... but he IS three... sharing is super hard sometimes and a mobile little brother has given him lots of opportunities to practice.
Tucker loves to play a little game where he moves his head to one side, then we do, the we move to the other side, etc. It is precious, but I can not get a picture of it no matter how hard I try :) His scar looks great, and his hair is growing in really thick and dark. He has had several follow up appointments and everyone says he looks great. We think so, too. We can't believe the difference in his head shape. Initially we were at a small risk for a second surgery to correct the forehead, and the plastic surgeon thinks this will not be necessary. We will continue to follow up with both surgeons for some time, but thankfully the time in-between appointments will get further and further in-between. Tucker sleeps all night-- but loves mornings-- takes two naps a day and eats great. I have a hunch he is going to consolidate his naps sooner than Dekker did, but that is okay. And, I'm trying to transition him to more and more table food. Why does it feel harder the second time around?!?
After seven years in this house, we decided it was high time to get our deck power washed and stained. We wanted to do the good stain-- the 5 year warranty kind-- and get a high-powered wash-- so we hired an aspiring handy-man to do it. He has been fantastic to work with and his bid was 1/3 of the other people we considered. Kinda frustrating, each person that came to look at the deck commented that the way the previous owners had it built was wrong and that it was starting to show signs of wear and tear that it otherwise wouldn't had they done it right in the first place. Ah! Oh well. The above picture is of Dekker, who wanted to watch the power washing but thought it was too loud so he found some earmuffs in the shape of footballs to put on.
Dekker is growing up everyday and we can't believe it. He has "best friends" and "old favorite" things. He plays jokes and his vocabulary is hysterical! He knows his letters and his numbers and he is "playing" soccer. Many of you know that his first few games didn't go so well, but he is improving. He is a slow to warm up type of kid, and it just takes him awhile to adjust. Last week, Dave took him to the game a few minutes early and they played around on the sidelines. By the time the game started, he was ready to go. We go again in a few hours here so we will see if this little "trick" works again this week. Dekker is also going to preschool, which he LOVES. I really debated, and actually decided not to send him, then changed my mind at the very last minute. In the end, he has to go to daycare two days a week AND then goes to preschool two of the mornings that I am home. I really debated that-- because I wanted to be at home with him on my days "off". But I knew he would thrive and love preschool, too. Plus his bestie Lily is in his class. So we did it and I am really glad we did. I do miss him in the mornings, but right now Tucker is still napping and I am cleaning and doing Bible study and drinking coffee in the quiet and that is pretty nice, too.
Finally, I am still loving Farrells. My clothes are fitting, finally, PTL. I haven't needed to buy any new clothes yet, but my current ones are super comfortable. I'm kinda in a weird spot in my closet because most of the stuff I was wearing before Tucker is almost too big, but my stack of "skinny jeans" is still too small. Maybe I need to go shopping. Yes, yes I do. I am so glad to feel fit and strong and not huge like I did one year ago... ...
Happy Weekend Friends!
Mae
To begin...our sweet baby boy is nearing the ONE year mark, and weighs as much as an average 2 year old and is in 24 month clothes. He is recovering tremendously-- so much so that I don't even call what he is doing "recovery" anymore. He is just crawling all around and getting into everything. He loves electric cords and outlets and the Carbon Monoxide detector. I am so proud of Dekker-- he is a great Big brother. He is learning to share... but he IS three... sharing is super hard sometimes and a mobile little brother has given him lots of opportunities to practice.
After seven years in this house, we decided it was high time to get our deck power washed and stained. We wanted to do the good stain-- the 5 year warranty kind-- and get a high-powered wash-- so we hired an aspiring handy-man to do it. He has been fantastic to work with and his bid was 1/3 of the other people we considered. Kinda frustrating, each person that came to look at the deck commented that the way the previous owners had it built was wrong and that it was starting to show signs of wear and tear that it otherwise wouldn't had they done it right in the first place. Ah! Oh well. The above picture is of Dekker, who wanted to watch the power washing but thought it was too loud so he found some earmuffs in the shape of footballs to put on.
 | |||
| I love this picture. Dave did some carpentry work between the power washing and the staining (which is going on now) and Dekker was his big helper. |
Dekker is growing up everyday and we can't believe it. He has "best friends" and "old favorite" things. He plays jokes and his vocabulary is hysterical! He knows his letters and his numbers and he is "playing" soccer. Many of you know that his first few games didn't go so well, but he is improving. He is a slow to warm up type of kid, and it just takes him awhile to adjust. Last week, Dave took him to the game a few minutes early and they played around on the sidelines. By the time the game started, he was ready to go. We go again in a few hours here so we will see if this little "trick" works again this week. Dekker is also going to preschool, which he LOVES. I really debated, and actually decided not to send him, then changed my mind at the very last minute. In the end, he has to go to daycare two days a week AND then goes to preschool two of the mornings that I am home. I really debated that-- because I wanted to be at home with him on my days "off". But I knew he would thrive and love preschool, too. Plus his bestie Lily is in his class. So we did it and I am really glad we did. I do miss him in the mornings, but right now Tucker is still napping and I am cleaning and doing Bible study and drinking coffee in the quiet and that is pretty nice, too.
Finally, I am still loving Farrells. My clothes are fitting, finally, PTL. I haven't needed to buy any new clothes yet, but my current ones are super comfortable. I'm kinda in a weird spot in my closet because most of the stuff I was wearing before Tucker is almost too big, but my stack of "skinny jeans" is still too small. Maybe I need to go shopping. Yes, yes I do. I am so glad to feel fit and strong and not huge like I did one year ago... ...
Happy Weekend Friends!
Mae
Monday, August 27, 2012
Skinny-ish Jeans
I am dedicating this post to my new work-out love, Farrells, and to my skinny jeans "I"ll buy these while I lose the baby weight after Dekker" jeans. That ended up being my "I hope they still fit after Tucker" jeans. Sigh. Actually, I should just dedicate this post to any pair of jeans in my home that I can wear.
Comfortably.
Sigh again.
In May I decided that my belated 30th birthday present to myself and my Mother's Day gift to myself was to do the Farrells 10 week challenge. It's thatexpensive much of an "investment in my health", I'm just saying-- I needed two holidays to justify it. And I have the summer "off". It was great timing.
So anyway, I love it. Actually, I love, love, love it. It is something that I have been wanting to do for a long time, but I never was willing toshell out invest the money. I'm so glad I did. Dave was on board. He works out every morning, so I joined the 4:30 class in the afternoon. Dave gets off early opens his office door and listens real good while the kids play educational games watch TV for 30 minutes (Tucker is secure in the swing). And I love not having to get up at the crack of dawn and still get a good workout in. In fact, this brings me to a short list of things I have loved:
* I love having the workout toward the end of the day-- it is like a "reset" button if I have had a tough day with the kids. And I like being home early enough to be a big help for the dinner/playtime/bath/bed routine.
* I love that it is climate controlled and indoors, even when it is 199 degrees outside.
* I love that somebody else does all the thinking and planning and all I have to do is show up.
* I love that it is a combination of strength and cardio.
So it is six days a week. That is a lot, but it feels good toget back into the habit of working out finally do something consistently for more than six weeks for one of the first times in my adult life. Now that I am not living a life of leisure working my buns off all day at home, and am back to work right down the street 30 minutes down the interstate in all but a different town at NCC two days a week, it is a little lot harder to get to the gym on my "work days". There is a Farrells location by my office, but it is still hard to leave work in time to get there and get home all but before dinner is cleaned up and the baby is in bed. On my work days I pack a cute little Puma bag reusable HyVee bag and cross my fingers. Then I inevitably go early, change clothes and introduce myself to the instructor come barreling through their doors and change my clothes in front of a bunch of strangers in the bathroom and rush out onto the mats. But I'm always glad I am there once we get going. I usually workout in a super chic, matching outfit from Scheels one of two pairs of black Capri pants and a JDRF T-shirt. One of the girls there called me Ms. Sallinger the first few weeks because most all of my shirts all say "Team Sallinger" on the back. I love it.
Sigh. Why is it so hard to work-out?? And make it a lifestyle? I wish jobs required an hour of exercise a day. It would sure save a lot of money on health insurance.
Anyway, it's a pretty hard workout. On my first day as a not "newbie 10 week-er" Ikinda thought had convinced myself all day that maybe it would be easy. And then I nearly threw up. On my very first day ever, I had to get a drink and take a break before the warm-up was over. Hahahahahahaha! But whatev. Today I had a flawless workout the instructor point out that I was punching with the wrong arm, but I am getting the hang of it. And I feel better. And I'm losing inches and my 10 week before and after pictures showed some improvement. And I lost several 2 or 3 body fat percentage points... that counts.
I'm focusing on my nutrition for this10 week cycle. I'm using "My Fitness Pal" on my phone because apparently "watching what I eat" means I just watch food go into my mouth. Besides, 80% of change is made in the... ...
Good Grief.
Why can't I work outone hour 45 minutes a day and eat whatever I want for the other 23 hours? Is it too much to ask that I want to eat candy and breads and coffee and muffins and cookies and Chinese and sushi and crap, crap, crap and still lose weight and inches as long as I work-out??? I mean, I'm working out here!
And I might become an instructor. If I can get up the nerve. And skill. And fitness level. And I think in the next 10 week cycle (Oct-Dec) I might add a few days of running. Why am I even typing that? Now people know. Please, if you see me ina few weeks tomorrow saddled up to a plate of nachos at La Mesa with my work bestie Leslie, drinking pop and loving my life, don't judge me. I am a work in progress.
Looooooooooong Sigh.
One Day At A Time.
On the journey,
Mae
PS If you are looking on an update on Tucker, it's coming. He is doinggreat ah-mazing!!!!
Comfortably.
Sigh again.
In May I decided that my belated 30th birthday present to myself and my Mother's Day gift to myself was to do the Farrells 10 week challenge. It's that
So anyway, I love it. Actually, I love, love, love it. It is something that I have been wanting to do for a long time, but I never was willing to
* I love having the workout toward the end of the day-- it is like a "reset" button if I have had a tough day with the kids. And I like being home early enough to be a big help for the dinner/playtime/bath/bed routine.
* I love that it is climate controlled and indoors, even when it is 199 degrees outside.
* I love that somebody else does all the thinking and planning and all I have to do is show up.
* I love that it is a combination of strength and cardio.
So it is six days a week. That is a lot, but it feels good to
Sigh. Why is it so hard to work-out?? And make it a lifestyle? I wish jobs required an hour of exercise a day. It would sure save a lot of money on health insurance.
Anyway, it's a pretty hard workout. On my first day as a not "newbie 10 week-er" I
I'm focusing on my nutrition for this10 week cycle. I'm using "My Fitness Pal" on my phone because apparently "watching what I eat" means I just watch food go into my mouth. Besides, 80% of change is made in the... ...
Good Grief.
Why can't I work out
And I might become an instructor. If I can get up the nerve. And skill. And fitness level. And I think in the next 10 week cycle (Oct-Dec) I might add a few days of running. Why am I even typing that? Now people know. Please, if you see me in
Looooooooooong Sigh.
One Day At A Time.
On the journey,
Mae
PS If you are looking on an update on Tucker, it's coming. He is doing
Saturday, July 7, 2012
The Good. The Bad. The Incredible.
It's time to talk about that Cranial Vault Reconstruction. I purposely didn't blog immediately following the surgery because I was afraid about what I would write. And everything seems worse "in the moment." Plus, I have had a summer cold, which has made my few "both kids are in bed" moments look like this: Scream around the house, do the dishes, dash into bed. You understand.
I also want to let you know that there are some pictures in this post that some people might find uncomfortable. I didn't put them on facebook because I didn't think anyone wanted them showing up on their News Feed all of the sudden. But since you clicked on this blog, and since you will have to scroll down to see them, I am putting the responsibility on you to know what you do and don't want to see. Um-k.
The Good.
There is so much good to share. So much to be thankful for that it is hard to know where to start. We had fantastic medical care at Children's Hospital. Everyone was a united team, rallying for Tucker's best. We believed he was in good hands-- great hands-- his entire stay. Two touching memories and then some pics from pre-op:
Memory One: We got stalled in pre-op for almost two extra hours. Since we brought Tucker in fasting, he was very hungry when the nurse finally came to get him. We were all a little exhausted, and hungry, and tired of the small little cubicle we were bouncing around in. Well, finally the nurse came to get Tucker. She was so sweet. She gave us lots of time for kisses and hugs-- such a sweet memory in my mind-- and when she went to put him on the bed he started crying. So, that woman just scooped him up in her arms, draped the blanket we brought around him, and offered to carry him into surgery. I was so thankful to send him off like that. The doctors and nurses all told us he was all smiles when he was brought back into the Operation Room. We sat in the little cubicle and gathered ourselves and prayed to ourselves and then went to the lobby to wait with our parents, and our sweet bestie Suz who had brought us Jimmy Johns (she was freaky fast with her delivery, too).
Memory Two: Our night nurse on the 5th floor, Leliana. I probably spelled that wrong. If anyone personally knows Leliana I hope you will point her to this blog so she knows what a great nurse and women she is. There is something touching about watching another woman care for your child, knowing she can do what you can't. No one did this with more grace and skill and compassion than Leliana. She was patient, soft-spoken, knowledgeable... wonderful. The last two nights I sent (practically begged) Dave home to sleep, so it was just Leliana and me. One night Tucker was up, and uncomfortable, and spiking a fever. She took care of all his meds-- then offered that maybe he could sleep in the hospital bed instead of on my chest-- perhaps this would lower the fever (body heat) and give me a chance to rest myself. So we carefully laid his sweet head on his pillow, elevated the bed and laid our cheeks down on the bed at his head level-- one on each side. We talked softly to him and patted his tummy and when he was just drifting off to sleep we chatted with each other a little. She laughed at our birth story, got me to talking about sweet Dekker, asked about my life outside the home. It occurred to me later that Tucker was asleep most of that conversation and she had become my middle of the night caregiver instead. She was a ray of light during some bleak nights and I am so thankful for herjob ministry to me. I slept as well as I could knowing she was monitoring Tucker, too. (This memory is making me cry.)
The Bad.
After much mental debate, I have decided to not offer too much commentary on "the bad." Frankly, I hope I remember the Good and the Incredible and never remember and quickly forget the bad. I will just say this-- our first night in the PICU was the longest night of my life, and I am not kidding when I say that I might need to see sweet Dena the therapist again before I can fully move on. It triggered every awful thing I can think of, and seeing Tucker in such pain, and being able to do literally nothing about it, was nothing short of traumatizing. Seeing his lines and monitors was nothing compared to hearing him scream, watching him thrash about-- I almost dropped him once when I was holding him, watching his heart rate race into the 260's, a midnight blood poke, a 3AM blood transfusion-- it was scary and terrible, terrible, terrible. But it's over. And, luckily to me, that is the only time I have experienced that, and I knew it would eventually get better. The PICU at Children's is a sad place, and we were reminded that our situation could get much worse as we watched a family two doors down prepare to say Good-Bye. Upsetting in its own right, it was also perspective giving.
The Incredible.
We were totally humbled, and amazed to feel the power of prayer during the surgery and during our stay. We couldn't keep up with texts and updated facebook instead, which landed nearly 100 "likes" at one point. To know so many people were thinking about us and praying for us made a huge difference. We felt uplifted and encouraged, even during the roughest times. We had a few visitors, who came with a serving heart and full of encouragement. They brought us Starbucks and dinners and lunches and thoughtful gifts and my bestie Beth even gave me the jacket off her back. David's parents juggled loving on Dekker with encouraging us, and even rearranged one night to bring Dekker to the hospital so we could see him for awhile. My parents exhausted themselves taking care of us, and getting in a couple days of work so they could take Dekker the next week. They drove the 250 mile round trip between their house and ours countless times. Please know that your prayers were noticed, every encouragement counted, your support was our nourishment. Thank you. And in the best way possible, I hope we never experience it again. (Or that we never need to, anyway.)
We also think that the medical science behind this surgery is Incredible. It is hard to think that his scalp was cut back, his skull cut open right down the middle, his skull removed, reshaped, and then put back in. On a Wednesday. And we went home Saturday. What?!? One surgeon said that when they cut the suture down his skull that it had a sort of "pop". This is an indicator that his head had been under pressure. Poor baby. Seriously. The surgeon said this pressure can lead to excessive fussiness, and several other "Cranio Families" have told us that their kids had a spike in developmental milestones after the surgery. So far, we have found that when Tucker is awake, has good pain control, and isn't tired, that he is a little different. Maybe it's just in my head, but I feel like he's sitting independently more, closer to crawling, talking more-- and just in general a bit more pleasant. I don't know. I suppose we will see over time.
Here are a few pics of his scar, etc. The scar and his swelling is looking much better. When we see it, we are reminded that we serve an Incredible God.
Our recovery at home has been here and there. We have good moments and tough moments. We expected that, though, for the most part. (Though it seems cruel that we got sick right now!) Our friends are bringing us meals and every time they leave our fridge is full and our heart is overflowing. If you want to keep praying for our recovery, we would appreciate it. We look forward to the day when he is off all his pain meds (which might be causing an upset tummy) and acting like Tucker again. We see glimpses of that now, and we know it was worth it, and that within just a few weeks this will feel more like a memory than a reality.
In the mean time, this sweet boy is still winning us over with his smiles. He has "discovered" the dog for what feels like the first time and is about to get whip-lash every time he sees her. He is talking more-- the sweetest sound to any Mom's ears. He is sitting totally by himself, feeding himself his bottle, and only waking at night once (for a bottle and pain meds and then back down). He is getting back to a nap schedule, loves his big brother, his soccer ball, and fresh air.
Here's to more of all things wonderful.
On the journey,
And almost to the other side.
Stef
I also want to let you know that there are some pictures in this post that some people might find uncomfortable. I didn't put them on facebook because I didn't think anyone wanted them showing up on their News Feed all of the sudden. But since you clicked on this blog, and since you will have to scroll down to see them, I am putting the responsibility on you to know what you do and don't want to see. Um-k.
The Good.
There is so much good to share. So much to be thankful for that it is hard to know where to start. We had fantastic medical care at Children's Hospital. Everyone was a united team, rallying for Tucker's best. We believed he was in good hands-- great hands-- his entire stay. Two touching memories and then some pics from pre-op:
Memory One: We got stalled in pre-op for almost two extra hours. Since we brought Tucker in fasting, he was very hungry when the nurse finally came to get him. We were all a little exhausted, and hungry, and tired of the small little cubicle we were bouncing around in. Well, finally the nurse came to get Tucker. She was so sweet. She gave us lots of time for kisses and hugs-- such a sweet memory in my mind-- and when she went to put him on the bed he started crying. So, that woman just scooped him up in her arms, draped the blanket we brought around him, and offered to carry him into surgery. I was so thankful to send him off like that. The doctors and nurses all told us he was all smiles when he was brought back into the Operation Room. We sat in the little cubicle and gathered ourselves and prayed to ourselves and then went to the lobby to wait with our parents, and our sweet bestie Suz who had brought us Jimmy Johns (she was freaky fast with her delivery, too).
Memory Two: Our night nurse on the 5th floor, Leliana. I probably spelled that wrong. If anyone personally knows Leliana I hope you will point her to this blog so she knows what a great nurse and women she is. There is something touching about watching another woman care for your child, knowing she can do what you can't. No one did this with more grace and skill and compassion than Leliana. She was patient, soft-spoken, knowledgeable... wonderful. The last two nights I sent (practically begged) Dave home to sleep, so it was just Leliana and me. One night Tucker was up, and uncomfortable, and spiking a fever. She took care of all his meds-- then offered that maybe he could sleep in the hospital bed instead of on my chest-- perhaps this would lower the fever (body heat) and give me a chance to rest myself. So we carefully laid his sweet head on his pillow, elevated the bed and laid our cheeks down on the bed at his head level-- one on each side. We talked softly to him and patted his tummy and when he was just drifting off to sleep we chatted with each other a little. She laughed at our birth story, got me to talking about sweet Dekker, asked about my life outside the home. It occurred to me later that Tucker was asleep most of that conversation and she had become my middle of the night caregiver instead. She was a ray of light during some bleak nights and I am so thankful for her
The Bad.
After much mental debate, I have decided to not offer too much commentary on "the bad." Frankly, I hope I remember the Good and the Incredible and never remember and quickly forget the bad. I will just say this-- our first night in the PICU was the longest night of my life, and I am not kidding when I say that I might need to see sweet Dena the therapist again before I can fully move on. It triggered every awful thing I can think of, and seeing Tucker in such pain, and being able to do literally nothing about it, was nothing short of traumatizing. Seeing his lines and monitors was nothing compared to hearing him scream, watching him thrash about-- I almost dropped him once when I was holding him, watching his heart rate race into the 260's, a midnight blood poke, a 3AM blood transfusion-- it was scary and terrible, terrible, terrible. But it's over. And, luckily to me, that is the only time I have experienced that, and I knew it would eventually get better. The PICU at Children's is a sad place, and we were reminded that our situation could get much worse as we watched a family two doors down prepare to say Good-Bye. Upsetting in its own right, it was also perspective giving.
The Incredible.
We were totally humbled, and amazed to feel the power of prayer during the surgery and during our stay. We couldn't keep up with texts and updated facebook instead, which landed nearly 100 "likes" at one point. To know so many people were thinking about us and praying for us made a huge difference. We felt uplifted and encouraged, even during the roughest times. We had a few visitors, who came with a serving heart and full of encouragement. They brought us Starbucks and dinners and lunches and thoughtful gifts and my bestie Beth even gave me the jacket off her back. David's parents juggled loving on Dekker with encouraging us, and even rearranged one night to bring Dekker to the hospital so we could see him for awhile. My parents exhausted themselves taking care of us, and getting in a couple days of work so they could take Dekker the next week. They drove the 250 mile round trip between their house and ours countless times. Please know that your prayers were noticed, every encouragement counted, your support was our nourishment. Thank you. And in the best way possible, I hope we never experience it again. (Or that we never need to, anyway.)
We also think that the medical science behind this surgery is Incredible. It is hard to think that his scalp was cut back, his skull cut open right down the middle, his skull removed, reshaped, and then put back in. On a Wednesday. And we went home Saturday. What?!? One surgeon said that when they cut the suture down his skull that it had a sort of "pop". This is an indicator that his head had been under pressure. Poor baby. Seriously. The surgeon said this pressure can lead to excessive fussiness, and several other "Cranio Families" have told us that their kids had a spike in developmental milestones after the surgery. So far, we have found that when Tucker is awake, has good pain control, and isn't tired, that he is a little different. Maybe it's just in my head, but I feel like he's sitting independently more, closer to crawling, talking more-- and just in general a bit more pleasant. I don't know. I suppose we will see over time.
Here are a few pics of his scar, etc. The scar and his swelling is looking much better. When we see it, we are reminded that we serve an Incredible God.
In the mean time, this sweet boy is still winning us over with his smiles. He has "discovered" the dog for what feels like the first time and is about to get whip-lash every time he sees her. He is talking more-- the sweetest sound to any Mom's ears. He is sitting totally by himself, feeding himself his bottle, and only waking at night once (for a bottle and pain meds and then back down). He is getting back to a nap schedule, loves his big brother, his soccer ball, and fresh air.
Here's to more of all things wonderful.
On the journey,
And almost to the other side.
Stef
Friday, June 22, 2012
Quick 5-- Happy Friday!
Hi Friends. What a gorgeous week. Thanks to my friend Tori's dedication to her "Quick Five"-- I am inspired. So here are five things that have been keeping us busy this week.
1. Monday I took a trip to Lincoln while the kids were at daycare. My mom and I had a great day together shopping and having lunch. I do love South Pointe mall! It was a nice distraction and a great time. This was their last day of daycare for quite awhile. I can't risk Tucker getting sick, and I love having them home. I didn't realize how much I would love the "summers off" part of my job!
2. We had Tucker's pre-op appointment Wednesday. We saw his pediatrician for a little physical-- to make sure he's not sick or doesn't need any medicine before surgery. She gave him the "thumbs up." Then she held him for awhile and turned to us and said, "It's going to be hard." I prefer my denial so we just smiled and nodded. Thursday we went to Children's Specialty Clinic for a pre-op blood "draw". It ended up being a finger poke, and took twice as long to drive there, park, and check in than it did to actually have his finger poked but I am not going to complain about incredible medical services down the street. Dave came with and we had fun playing with Dekker and making jokes with each other. I married one funny man, who can seriously make any situation better with his humor. Here are a few pics from our adventure:
3. Thursday morning Tucker got up super early. He was UP from his morning nap by 9AM, so we headed to Natasha's Clubhouse at the church. It was great! The kids learned about the Rainbow House, then we had a Bible story, made a snack and made a craft. Dekker is on the young end of the crowd, so he required some help (like reading a recipe and measuring ingredients!) and little man was needing some attention, so a few sympathetic Mom's with wonderful older kids helped Dekker bake. I met one mom who was really nice and just loved on Tucker all morning. I hope I get to go again this summer to see her! We also exchanged our library books Thursday, and had a front yard picnic. Both boys napped all afternoon. It was a great, busy day. (P.S. Check out the Stonebridge 5K coming up this weekend! You can still register, but probably won't get a shirt.)
4. I recently read, in one day, a book about packing your house for survival in the event of a disaster (natural, terrorism, or other). It was incredible. I got turned on to this author thanks to this blog post-- another great read about how to pack a little bag in your car to help you get home in the event that you are at work or away from home when a disaster hits. The book was a little anxiety producing, and I seriously prayed all the way through it that God would help me keep perspective and remember that He will be with me no matter what happens in this life. Call me crazy, but I'm just saying that it's not a bad idea to be intentional about keeping some water, a poncho and a good pair of shoes in your car, or a weather radio/water/extra formula/meal replacement bars in your house. This author suggests that you pack your goods in a backpack at home, so if you have to leave quickly everything is in one place. We would abandon home in a very worst case scenario, so I am going to start with a tote at home and car bag and go from there. I already found some good stuff he suggests second-hand on Craigslist in the camping section. And now you think I really am crazy :)
5. We had "Memory Verse Monday". I have been thinking about this more and more, especially because Dekker can all but recite a book by memory after we read it to him three times. His little mind is such a sponge. So I bought a little 2 & 3 year old Memory Verse book at Parables last week and am trying to keep it simple. Am I the only Mom who avoids this stuff because I think it has to be an all morning amazing event? Instead, we did a little lesson, seriously 30 seconds, and finger painted a coloring sheet I copied out of the book, and learned the verse. This week it was Genesis 1:1. We keep a copy of it on a note-card by his books for before nap and before bed, and another copy of it on the fridge-- and randomly all day we practice it. It is adorable to hear him recite it, which he is very proud of. Here's to being more intentional about memorizing scripture-- it will be great for Dekker and Mom! Any other mom's of preschoolers out there want to join us?? Click here to see the book we are using.
Next week is obviously a big week for us. We appreciate your prayers so very much. Surgery is scheduled for 2PM on Wednesday, June 27th. We check-in at noon. Big thanks to our family and small group and friends who are taking great care of us-- and making sure we feel supported and encouraged and well fed and that Dekker is taken care of and having fun!
On the journey,
Stefanie
1. Monday I took a trip to Lincoln while the kids were at daycare. My mom and I had a great day together shopping and having lunch. I do love South Pointe mall! It was a nice distraction and a great time. This was their last day of daycare for quite awhile. I can't risk Tucker getting sick, and I love having them home. I didn't realize how much I would love the "summers off" part of my job!
2. We had Tucker's pre-op appointment Wednesday. We saw his pediatrician for a little physical-- to make sure he's not sick or doesn't need any medicine before surgery. She gave him the "thumbs up." Then she held him for awhile and turned to us and said, "It's going to be hard." I prefer my denial so we just smiled and nodded. Thursday we went to Children's Specialty Clinic for a pre-op blood "draw". It ended up being a finger poke, and took twice as long to drive there, park, and check in than it did to actually have his finger poked but I am not going to complain about incredible medical services down the street. Dave came with and we had fun playing with Dekker and making jokes with each other. I married one funny man, who can seriously make any situation better with his humor. Here are a few pics from our adventure:
 |
| All this for a little finger poke! |
 |
| That's a real tear! So sad! |
 |
| He melts my heart! He was really a trooper. |
 |
| I love the way these two interact! |
4. I recently read, in one day, a book about packing your house for survival in the event of a disaster (natural, terrorism, or other). It was incredible. I got turned on to this author thanks to this blog post-- another great read about how to pack a little bag in your car to help you get home in the event that you are at work or away from home when a disaster hits. The book was a little anxiety producing, and I seriously prayed all the way through it that God would help me keep perspective and remember that He will be with me no matter what happens in this life. Call me crazy, but I'm just saying that it's not a bad idea to be intentional about keeping some water, a poncho and a good pair of shoes in your car, or a weather radio/water/extra formula/meal replacement bars in your house. This author suggests that you pack your goods in a backpack at home, so if you have to leave quickly everything is in one place. We would abandon home in a very worst case scenario, so I am going to start with a tote at home and car bag and go from there. I already found some good stuff he suggests second-hand on Craigslist in the camping section. And now you think I really am crazy :)
5. We had "Memory Verse Monday". I have been thinking about this more and more, especially because Dekker can all but recite a book by memory after we read it to him three times. His little mind is such a sponge. So I bought a little 2 & 3 year old Memory Verse book at Parables last week and am trying to keep it simple. Am I the only Mom who avoids this stuff because I think it has to be an all morning amazing event? Instead, we did a little lesson, seriously 30 seconds, and finger painted a coloring sheet I copied out of the book, and learned the verse. This week it was Genesis 1:1. We keep a copy of it on a note-card by his books for before nap and before bed, and another copy of it on the fridge-- and randomly all day we practice it. It is adorable to hear him recite it, which he is very proud of. Here's to being more intentional about memorizing scripture-- it will be great for Dekker and Mom! Any other mom's of preschoolers out there want to join us?? Click here to see the book we are using.
Next week is obviously a big week for us. We appreciate your prayers so very much. Surgery is scheduled for 2PM on Wednesday, June 27th. We check-in at noon. Big thanks to our family and small group and friends who are taking great care of us-- and making sure we feel supported and encouraged and well fed and that Dekker is taken care of and having fun!
On the journey,
Stefanie
Friday, June 8, 2012
Quick 5 Thoughts on Car Seats
It is no surprise to anyone that Tucker is just huge. Weighing in at over 9lbs on his birthday, he continues to grow in the 90th percentile (or bigger). Which means that at not even seven months, he wears 12 month clothes... and is a beast to carry around in his infant seat. He is way too heavy, and about to top the height requirement anyway. And he doesn't sleep in it anymore, for the most part. So I decided it was time to move him up to a convertible car seat, which means a little car seat switcharo here at the Rowe household. Which means I am confused and conflicted about guidelines, rules, what to buy, how to install, how much money to spend, etc.
So I decided to do some research and I am posting it here-- mostly so I can have SOMETHING to show for a few hours of research-- and so I can review it at the next step with these kiddos-- and because it might help someone else. Please hear absolutely NO judgement in this post. I am, by no means, pointing fingers or assuming or making character calls or telling you what to do. In my life right now, Tucker is riding in an expired infant carrier and Dekker has been riding in his convertible car seat in my Civic (which does not have the LATCH system), which I have since learned he has grossly outgrown. A lot of this material is cut and paste from various websites, including mostly the National Highway Traffic Safety Administration and the product websites for the two brands we currently have (Graco and Britix). I am not an expert, just trying to not spend a fortune and still keep our kids safe as we grow to the "next step."
Quick 5 Thoughts on Car Seats:
1. Once in an accident, your car seat has been compromised. Some bloggers and websites suggested that minor fender benders (the vehicle could be driven away from the crash, the vehicle door closest to the car safety seat was not damaged, no one in the vehicle was injured, the air bags did not go off) do not count but anything remotely damaging to the car could be "very damaging and compromising to the car seat." Even if there appears to be no damage to the car seat on the surface, the impact and force of a collision can cause unseen structural damage to the interior of your car seat. Any such damage may prohibit your car seat from properly protecting your child in the event of a sudden stop or crash. Good news though is that time and time again, authors suggested that insurance companies will pay to replace your car seat when you have been in a crash. Heck, it's worth a try.
2. Car seats do expire. I sometimes feel like this is a marketing ploy, especially when you consider that a child's safety is perhaps the most vulnerable thing for marketing professionals to make money off. Based on this research, I am still comfortable using our barely expired (typical life of a car seat is 6 years) infant carrier, and upon inspection the materials still appear to be in good shape, it has not been recalled, etc. I do see some validity to the points below that plastic can stress and can have hairline fractures which we might not see that wouldn't hold up as well in a crash. I once read that sunlight in particular breaks down plastic, especially in cars which are parked outside in the hot sun. That just makes sense to me. According to the Google, here are some of the basic reasons why car seats expire:
It should also be noted that some car seat manufacturers, instead of discussing this in terms of the child's height, they discuss it in terms of "seated shoulder height." Basically, if you have your child sit against a wall and then put a mark on the top of his shoulders and then measure from the floor to that mark. Britix is the most popular manufacturer who details their seats like this. This accommodates torso height, not just overall height, which might help some families make a better decision about when to move out of a 5 point harness.
If I could do it again, I would have done more research on harness height when I bought the Nautilus. There is a pretty big discrepancy. I'm not worried about weight, because my boys will probably always outgrow something by height before weight. Dekker still safely fits into the 5 point harness in the Nautilus, and I am glad about that, but when he outgrows the harness height we will move him to the belt positioning booster. I think with a little more research I could have bought him a seat where he could have stayed in the 5 point harness a little longer-- but I'm not sure to be honest. Which leads me to my next point.
4. If a child is forward facing and has outgrown the 5 point harness (by height or by weight) then the next step is to use a "belt positioning booster." This is the old school "high back booster" and has the little detail at the shoulder to feed the seat belt through. This helps position the seat belt correctly so that it does not end up across the neck, across the stomach, or totally out of the picture in the event of an accident. You have outgrown the "belt positioning (high back) booster" when the child's ears reach the top of the seat, or when s/he has outgrown the seat by weight or height. For example, our Nautilus can become a "belt positioning booster" for a child 30 to 100 lbs and who is 38 to 57 (4ft, 9inches) inches and is approximately three, as long as the child's ears do not go over the top of the back. Dekker barely fits this requirement (but since he also still fits the 5 point harness requirement I will keep it "as is" until he gets too tall).
5. Just recently the American Academy of Pediatrics and the National Highway Traffic Safety Administration set out a few new child restraint recommendations which got a lot of press, jokes, blogging space, etc.
The first recommendation was that all infants and toddlers remain in rear-facing car seats until age 2, or until they outgrow the height and weight limits of the seat. (My first question to that is: Which carseat? The infant carrier or the convertible? I assume the convertible because I know very few children who are still in the infant carrier at one, and because they are only recommended by the manufacturers until age one.) For our rear facing convertible car seat, the Britix Marathon, that means until Tucker is 2, or until he is 35lbs with a seated shoulder height of 16". Just as a reference, Dekker is 35.5lbs, with a seated shoulder height of 18". So if these recommendations stay, that pretty much means Tucker will be rear facing until he is two. Ug, that is a little excessive to me. Then again, this recommendation was made because children's "head and neck are often left free to sort of whip forward in the event of a crash" when they are forward facing too early. And, well, that sounds awful. Maybe Tucker will be "super long torso boy" and will outgrow his rear facing car seat before two. Otherwise, he might end up looking like this. Man, those legs look cramped. (But maybe her head and neck look really supported?!?)
The second recommendation was that the age limit of the booster (age 8) was replaced with a height limit (4-feet-9 inches)-- when experts believe the seat belt should fit properly across the chest and lap. The booster seat is designed to "boost a child up higher so that the car's seat belt fits properly over the child." A high back booster will accommodate a child up to 4ft, 9inches (and 100lbs) and a "no back" booster will accommodate a child from 4-10 years old, from 40-100 lbs and 40” to 57” (4ft, 9inches) tall so long as the child's ears do not top the back of the actual seat in the car. So I'm a little unclear if this recommendation is to keep kids in a HIGH BACK booster, or just A booster. Does anyone know? 4ft 9" and 100lbs is the dimensions of some adults, by the way :) There are some pretty clear guidelines about how to know when your child is ready for no car seat, but since we're so far from that I really didn't give it much attention.
It is interesting to note that Nebraska Law only requires children to be bucked up until age 6. They state:
The Nebraska child passenger safety and safety belt laws, like other states’ restraint laws, are the result of compromises between the “best practice” recommendations of safety experts and provisions that the legislators feel are practical, enforceable, and will be tolerated by the general public and their own constituents. Occupant restraint laws can be considered to be minimum standards.
In the end, we decided to outfit the 4Runner with our "good" car seats-- for interstate and highway travel and for long trips. For Tucker, this means the Britix convertible, rear facing, until he is in preschool (just kidding). For Dekker, this means that he will stay in the Graco Nautilus with the 5 point harness-- until his shoulders are taller than the harness slot.
For the Civic, which will now need two new seats, we are buying a "belt positioning booster" for Dekker. He meets all the requirements and it is $58. I can't see why I would spend an additional $100 for the 5 point harness, if he is just going to outgrow it in a few months anyway. For Tucker, I am likely buying a used convertible car seat from some reliable friends. It is not expired and has never been in an accident. It should be noted that we use my car two days a week, and I transport the kids typically home from daycare twice a week in it. It drives about 10 miles a week with kids in it-- right down Blondo street. But I still believe it needs up to date and appropriate car seats because if I get in an accident I never want to wonder about these things.
You can learn more here and here.
So there you have it. Sigh.
I'm interested to know what other Mom's think about this issue. I am fairly hyper-diligent about this, maybe boarder line obsessed, and I know not everyone is. Do you pay much attention to it? Does it bother you if a car seat is expired? Why is the 5 point harness so bad if the slots are below the shoulders? Will you keep your child rear facing until s/he is basically two? Will you keep your older kids in a booster until they are 4'9"? What kind of booster?
On the journey,
(and buckled up!)
Stef
So I decided to do some research and I am posting it here-- mostly so I can have SOMETHING to show for a few hours of research-- and so I can review it at the next step with these kiddos-- and because it might help someone else. Please hear absolutely NO judgement in this post. I am, by no means, pointing fingers or assuming or making character calls or telling you what to do. In my life right now, Tucker is riding in an expired infant carrier and Dekker has been riding in his convertible car seat in my Civic (which does not have the LATCH system), which I have since learned he has grossly outgrown. A lot of this material is cut and paste from various websites, including mostly the National Highway Traffic Safety Administration and the product websites for the two brands we currently have (Graco and Britix). I am not an expert, just trying to not spend a fortune and still keep our kids safe as we grow to the "next step."
Quick 5 Thoughts on Car Seats:
1. Once in an accident, your car seat has been compromised. Some bloggers and websites suggested that minor fender benders (the vehicle could be driven away from the crash, the vehicle door closest to the car safety seat was not damaged, no one in the vehicle was injured, the air bags did not go off) do not count but anything remotely damaging to the car could be "very damaging and compromising to the car seat." Even if there appears to be no damage to the car seat on the surface, the impact and force of a collision can cause unseen structural damage to the interior of your car seat. Any such damage may prohibit your car seat from properly protecting your child in the event of a sudden stop or crash. Good news though is that time and time again, authors suggested that insurance companies will pay to replace your car seat when you have been in a crash. Heck, it's worth a try.
2. Car seats do expire. I sometimes feel like this is a marketing ploy, especially when you consider that a child's safety is perhaps the most vulnerable thing for marketing professionals to make money off. Based on this research, I am still comfortable using our barely expired (typical life of a car seat is 6 years) infant carrier, and upon inspection the materials still appear to be in good shape, it has not been recalled, etc. I do see some validity to the points below that plastic can stress and can have hairline fractures which we might not see that wouldn't hold up as well in a crash. I once read that sunlight in particular breaks down plastic, especially in cars which are parked outside in the hot sun. That just makes sense to me. According to the Google, here are some of the basic reasons why car seats expire:
- Technology Improves and Standards Change. A good example of this is that back in 2002 car seats were not even equipped with Lower Anchor and Tethers for Children (LATCH). Now however, they are a standard feature in nearly all car seats. Car seat expiration dates ensure that seats being used are current and up to snuff.
- Materials Wear Down. Car seats were not made to last forever. Overtime the seat base can develop hairline fractures which may shatter in a crash, and belts can become slightly elastic after years of use. Plastic stresses and warps, the Styrofoam can degrade. Straps and fabrics fray and rip. Important instructional labels fade, tear or fall off completely.
- If you are still wondering what can happen, check out this crash test video. In the video, the car seat harness breaks through the shell of the seat upon impact.
- Only Tested for a Certain Period. After a certain amount of time, manufacturers do not test seats. They cannot attest to how older seats will perform in an accident.
It should also be noted that some car seat manufacturers, instead of discussing this in terms of the child's height, they discuss it in terms of "seated shoulder height." Basically, if you have your child sit against a wall and then put a mark on the top of his shoulders and then measure from the floor to that mark. Britix is the most popular manufacturer who details their seats like this. This accommodates torso height, not just overall height, which might help some families make a better decision about when to move out of a 5 point harness.
If I could do it again, I would have done more research on harness height when I bought the Nautilus. There is a pretty big discrepancy. I'm not worried about weight, because my boys will probably always outgrow something by height before weight. Dekker still safely fits into the 5 point harness in the Nautilus, and I am glad about that, but when he outgrows the harness height we will move him to the belt positioning booster. I think with a little more research I could have bought him a seat where he could have stayed in the 5 point harness a little longer-- but I'm not sure to be honest. Which leads me to my next point.
4. If a child is forward facing and has outgrown the 5 point harness (by height or by weight) then the next step is to use a "belt positioning booster." This is the old school "high back booster" and has the little detail at the shoulder to feed the seat belt through. This helps position the seat belt correctly so that it does not end up across the neck, across the stomach, or totally out of the picture in the event of an accident. You have outgrown the "belt positioning (high back) booster" when the child's ears reach the top of the seat, or when s/he has outgrown the seat by weight or height. For example, our Nautilus can become a "belt positioning booster" for a child 30 to 100 lbs and who is 38 to 57 (4ft, 9inches) inches and is approximately three, as long as the child's ears do not go over the top of the back. Dekker barely fits this requirement (but since he also still fits the 5 point harness requirement I will keep it "as is" until he gets too tall).
5. Just recently the American Academy of Pediatrics and the National Highway Traffic Safety Administration set out a few new child restraint recommendations which got a lot of press, jokes, blogging space, etc.
The first recommendation was that all infants and toddlers remain in rear-facing car seats until age 2, or until they outgrow the height and weight limits of the seat. (My first question to that is: Which carseat? The infant carrier or the convertible? I assume the convertible because I know very few children who are still in the infant carrier at one, and because they are only recommended by the manufacturers until age one.) For our rear facing convertible car seat, the Britix Marathon, that means until Tucker is 2, or until he is 35lbs with a seated shoulder height of 16". Just as a reference, Dekker is 35.5lbs, with a seated shoulder height of 18". So if these recommendations stay, that pretty much means Tucker will be rear facing until he is two. Ug, that is a little excessive to me. Then again, this recommendation was made because children's "head and neck are often left free to sort of whip forward in the event of a crash" when they are forward facing too early. And, well, that sounds awful. Maybe Tucker will be "super long torso boy" and will outgrow his rear facing car seat before two. Otherwise, he might end up looking like this. Man, those legs look cramped. (But maybe her head and neck look really supported?!?)
The second recommendation was that the age limit of the booster (age 8) was replaced with a height limit (4-feet-9 inches)-- when experts believe the seat belt should fit properly across the chest and lap. The booster seat is designed to "boost a child up higher so that the car's seat belt fits properly over the child." A high back booster will accommodate a child up to 4ft, 9inches (and 100lbs) and a "no back" booster will accommodate a child from 4-10 years old, from 40-100 lbs and 40” to 57” (4ft, 9inches) tall so long as the child's ears do not top the back of the actual seat in the car. So I'm a little unclear if this recommendation is to keep kids in a HIGH BACK booster, or just A booster. Does anyone know? 4ft 9" and 100lbs is the dimensions of some adults, by the way :) There are some pretty clear guidelines about how to know when your child is ready for no car seat, but since we're so far from that I really didn't give it much attention.
It is interesting to note that Nebraska Law only requires children to be bucked up until age 6. They state:
The Nebraska child passenger safety and safety belt laws, like other states’ restraint laws, are the result of compromises between the “best practice” recommendations of safety experts and provisions that the legislators feel are practical, enforceable, and will be tolerated by the general public and their own constituents. Occupant restraint laws can be considered to be minimum standards.
In the end, we decided to outfit the 4Runner with our "good" car seats-- for interstate and highway travel and for long trips. For Tucker, this means the Britix convertible, rear facing, until he is in preschool (just kidding). For Dekker, this means that he will stay in the Graco Nautilus with the 5 point harness-- until his shoulders are taller than the harness slot.
For the Civic, which will now need two new seats, we are buying a "belt positioning booster" for Dekker. He meets all the requirements and it is $58. I can't see why I would spend an additional $100 for the 5 point harness, if he is just going to outgrow it in a few months anyway. For Tucker, I am likely buying a used convertible car seat from some reliable friends. It is not expired and has never been in an accident. It should be noted that we use my car two days a week, and I transport the kids typically home from daycare twice a week in it. It drives about 10 miles a week with kids in it-- right down Blondo street. But I still believe it needs up to date and appropriate car seats because if I get in an accident I never want to wonder about these things.
You can learn more here and here.
So there you have it. Sigh.
I'm interested to know what other Mom's think about this issue. I am fairly hyper-diligent about this, maybe boarder line obsessed, and I know not everyone is. Do you pay much attention to it? Does it bother you if a car seat is expired? Why is the 5 point harness so bad if the slots are below the shoulders? Will you keep your child rear facing until s/he is basically two? Will you keep your older kids in a booster until they are 4'9"? What kind of booster?
On the journey,
(and buckled up!)
Stef
Wednesday, May 30, 2012
Circled on the Calendar
I have learned that scheduling a surgery like this takes several steps. I knew it would, but I am learning just exactly what that means. First, we had XRays, then met with the neurosurgeon, then the CT Scan, then wait five weeks and see the cranial facial surgeon, then wait three weeks for the insurance to get authorized, then wait 8 days to hear from the scheduler, then wait four weeks for surgery. Early in this process, things moved at a lightening pace. Thankfully. That was, by far, the most scary time yet and we were so glad to have our questions answered quickly and more serious conditions ruled out-- but following an otherwise "clean" CT scan and with an otherwise healthy baby (thank you Lord)-- and the waiting game began.
Insurance Authorization: After seeing the cranial facial surgeon in early May we waited two weeks for him to submit it to insurance. This is not considered "cosmetic" but is considered "elective." As you might know, all surgeries except for the ones in the ER are considered "elective". And due to the financials of this surgery, and because submitting to insurance has become "routine" for most doctors, our surgeons prepared paperwork and pictures for our insurance. They said it has been "rejected" once in all their years, and that was easily reversed. But still, this was a necessary step. I believe God did a miracle in that once the paperwork got to insurance, it got authed in ONE DAY. Sometimes this step takes three or four weeks or longer, and I am so thankful we didn't have to keep waiting.
I called 10 days after our appointment and the staff said our paperwork had not even gotten submitted yet. I was so angry, and really acted in a way that I was not proud of. I was so frustrated. I cried so much that, completely exhausted, I canceled my plans for the night and threw my hands up in desperation. (Well, after I used them to text everyone with a keyboard about my frustration :) I surrendered to God, and four days later we had our authorization. Thanks, God.
Scheduling: Today I was mindlessly switching laundry, with my head in the dryer, when I answered my phone and -- low and behold-- it was the surgeon's scheduler. She apologized for the delay, and explained the difficulty of scheduling both surgeons and an operating room. Etc, etc, and she has it scheduled for nine weeks from today, July 31st. I managed to keep my head about me and explained that I have the summer off and had been led to believe that the surgery would be much sooner-- would she please talk to the surgeons to reconsider. She said she would call back. Sure enough, she called back and the day is circled on our calendar-- Wednesday, June 27th. So there we have it. So thrilled to hopefully have it done with plenty of time to help Tucker recover before students come back to NCC. And, we are ready to be "on the other side" of this surgery. We are ready for the waiting and anticipation to be over.
I'm excited to getting back to the work of being a mom, and not worrying about schedulers, insurance, appointments, etc for awhile. We will have a pre-op physical with our pediatrician a week before the surgery, some blood work before it, and probably other stuff I don't even know about yet. For now, we are thanking God for helping us get to here and we are trying to take it one step at a time-- knowing that it is a big part of our lives, but not our entire life!
I am also GIVING THANKS for:
* Gods peace and genuinely low anxiety. I am thankful for a sure understanding that God is real, that he loves Tucker, and that He is good.
* The way this has worked out in scheduling-- we are trusting in Gods timing and trusting that He opened the doors to have this sooner rather than later. For flexible work, and for the peace of mind knowing I have all of July off to help Tucker recover for as long as we all need.
* That our insurance was authed so quickly.
* That this surgery will take place around the 6 month mark.
* My three boys-- they are each totally wonderful. Tucker has become a real joy. Dave and I laughed that we have always loved him... and we're starting to like him, too :)
* A few wonderful "Cranio Moms" I have met. Katy's son had this surgery in November at Children's and she has been nothing short of fantastic, willing, helpful and empathetic. Holly is in the exact same shoes as me (as in she got her surgery date today, too). Together, these ladies have helped me remember that I am not alone. I have met other families with children who had this procedure six or seven or more years ago-- such a blessing. Thank you to each of you who have helped us get connected to others. I am also following another local blogger whose daughter just successfully had this procedure here at Children's.
Thank you for your prayers. We are praying for a peaceful, healthy month!
On the journey,
Stefanie
Insurance Authorization: After seeing the cranial facial surgeon in early May we waited two weeks for him to submit it to insurance. This is not considered "cosmetic" but is considered "elective." As you might know, all surgeries except for the ones in the ER are considered "elective". And due to the financials of this surgery, and because submitting to insurance has become "routine" for most doctors, our surgeons prepared paperwork and pictures for our insurance. They said it has been "rejected" once in all their years, and that was easily reversed. But still, this was a necessary step. I believe God did a miracle in that once the paperwork got to insurance, it got authed in ONE DAY. Sometimes this step takes three or four weeks or longer, and I am so thankful we didn't have to keep waiting.
I called 10 days after our appointment and the staff said our paperwork had not even gotten submitted yet. I was so angry, and really acted in a way that I was not proud of. I was so frustrated. I cried so much that, completely exhausted, I canceled my plans for the night and threw my hands up in desperation. (Well, after I used them to text everyone with a keyboard about my frustration :) I surrendered to God, and four days later we had our authorization. Thanks, God.
Scheduling: Today I was mindlessly switching laundry, with my head in the dryer, when I answered my phone and -- low and behold-- it was the surgeon's scheduler. She apologized for the delay, and explained the difficulty of scheduling both surgeons and an operating room. Etc, etc, and she has it scheduled for nine weeks from today, July 31st. I managed to keep my head about me and explained that I have the summer off and had been led to believe that the surgery would be much sooner-- would she please talk to the surgeons to reconsider. She said she would call back. Sure enough, she called back and the day is circled on our calendar-- Wednesday, June 27th. So there we have it. So thrilled to hopefully have it done with plenty of time to help Tucker recover before students come back to NCC. And, we are ready to be "on the other side" of this surgery. We are ready for the waiting and anticipation to be over.
I'm excited to getting back to the work of being a mom, and not worrying about schedulers, insurance, appointments, etc for awhile. We will have a pre-op physical with our pediatrician a week before the surgery, some blood work before it, and probably other stuff I don't even know about yet. For now, we are thanking God for helping us get to here and we are trying to take it one step at a time-- knowing that it is a big part of our lives, but not our entire life!
I am also GIVING THANKS for:
* Gods peace and genuinely low anxiety. I am thankful for a sure understanding that God is real, that he loves Tucker, and that He is good.
* The way this has worked out in scheduling-- we are trusting in Gods timing and trusting that He opened the doors to have this sooner rather than later. For flexible work, and for the peace of mind knowing I have all of July off to help Tucker recover for as long as we all need.
* That our insurance was authed so quickly.
* That this surgery will take place around the 6 month mark.
* My three boys-- they are each totally wonderful. Tucker has become a real joy. Dave and I laughed that we have always loved him... and we're starting to like him, too :)
* A few wonderful "Cranio Moms" I have met. Katy's son had this surgery in November at Children's and she has been nothing short of fantastic, willing, helpful and empathetic. Holly is in the exact same shoes as me (as in she got her surgery date today, too). Together, these ladies have helped me remember that I am not alone. I have met other families with children who had this procedure six or seven or more years ago-- such a blessing. Thank you to each of you who have helped us get connected to others. I am also following another local blogger whose daughter just successfully had this procedure here at Children's.
Thank you for your prayers. We are praying for a peaceful, healthy month!
On the journey,
Stefanie
Friday, May 18, 2012
Quick 5
A truly quick "Quick Five."
1. Boy, these (housing) interest rates are LOW. Has me thinking all kinds of things. Problem is, taxes are still so dang HIGH.
2. My baby is 6 months old? How did that happen?
3. Still no news from the surgeon. I am trying not to think negative thoughts about his character and integrity as we wait for him to write a letter so our insurance can approve this and we can schedule it.
4. Looking forward to the Stormchasers game Saturday night.
5. This weekend is my Mother's Day. Last Sunday felt too much like exhausting work, so Dave agreed that we could celebrate this weekend. I'm picking Saturday. And I'm going to eat donuts and feel not one ounce guilty :)
Happy Weekend, Friends!
On the Journey,
Mae
1. Boy, these (housing) interest rates are LOW. Has me thinking all kinds of things. Problem is, taxes are still so dang HIGH.
2. My baby is 6 months old? How did that happen?
3. Still no news from the surgeon. I am trying not to think negative thoughts about his character and integrity as we wait for him to write a letter so our insurance can approve this and we can schedule it.
4. Looking forward to the Stormchasers game Saturday night.
5. This weekend is my Mother's Day. Last Sunday felt too much like exhausting work, so Dave agreed that we could celebrate this weekend. I'm picking Saturday. And I'm going to eat donuts and feel not one ounce guilty :)
Happy Weekend, Friends!
On the Journey,
Mae
Wednesday, May 16, 2012
Quick Update
Harass Cranial-Facial Surgeon's staff? Check.
The sweet assistant to our Cranial-Facial Surgeon, Colleen, has been "helping" me this week. Mostly, she has been tolerating my harassment :) We talked Monday, and today, and both days the news was the same-- no letter from the surgeon yet to even send to insurance. Ug. She did say that once the letter is dictated and signed that she will follow up with insurance personally by fax or phone and maybe "help things along." It is so frustrating for this to be so completely out of our hands, yet affect us so much. Particularly in regards to scheduling, we would like to let Dave's employer know and rearrange some plans for the summer if we need to. However, we know that it will eventually get done and we trust that Tucker is just fine while he waits. And we know that God has great plans for us and that His timing is perfect. In the mean time I find myself saying things like, "I know you're just doing your job, and I'm just trying to do my job as a Mom..."
Three other quick things:
1. Happy 6 month birthday, Tucker. How did you get so big?
2. Please check out my facebook page to see how you can vote for http://craniocarebears.org/ to win the Aveeno Challenge, which is $1,000 for winning the monthly contest and up to $10,000 if they win the whole thing. You have to vote on Aveeno's facebook page and it only takes a sec, no signing up required.
3. A few people have asked about my sermon on Sunday. I felt like it went just fine and got some wonderful feedback from visitors and regulars alike, and you can listen to the podcast here: http://www.stonebridgeonline.net/home/. I do, however, hate the podcast. It's so one-dimensional, but whatev, Glory to God if it somehow blesses you. If not, just shut it off!
On the Journey,
Stef
The sweet assistant to our Cranial-Facial Surgeon, Colleen, has been "helping" me this week. Mostly, she has been tolerating my harassment :) We talked Monday, and today, and both days the news was the same-- no letter from the surgeon yet to even send to insurance. Ug. She did say that once the letter is dictated and signed that she will follow up with insurance personally by fax or phone and maybe "help things along." It is so frustrating for this to be so completely out of our hands, yet affect us so much. Particularly in regards to scheduling, we would like to let Dave's employer know and rearrange some plans for the summer if we need to. However, we know that it will eventually get done and we trust that Tucker is just fine while he waits. And we know that God has great plans for us and that His timing is perfect. In the mean time I find myself saying things like, "I know you're just doing your job, and I'm just trying to do my job as a Mom..."
Three other quick things:
1. Happy 6 month birthday, Tucker. How did you get so big?
2. Please check out my facebook page to see how you can vote for http://craniocarebears.org/ to win the Aveeno Challenge, which is $1,000 for winning the monthly contest and up to $10,000 if they win the whole thing. You have to vote on Aveeno's facebook page and it only takes a sec, no signing up required.
3. A few people have asked about my sermon on Sunday. I felt like it went just fine and got some wonderful feedback from visitors and regulars alike, and you can listen to the podcast here: http://www.stonebridgeonline.net/home/. I do, however, hate the podcast. It's so one-dimensional, but whatev, Glory to God if it somehow blesses you. If not, just shut it off!
On the Journey,
Stef
Tuesday, May 8, 2012
Surgeon #2
Today, I am in just absolute awe of medical science. What an incredible time we live in. Today we had a 2:30 appointment with Dr. Jason Miller, a pediatric Cranial/Facial Surgeon. Dr. Miller has made it his life's work to correct deformities in children. He is, apparently, nationally known for his work on the jaw and is one of the only surgeons who does the Cranial Vault Reconstruction around, and the only in Omaha. Have I mentioned how glad I am to live down the street from this hospital and medical center? Wow. Anyway, the appointment went on without fanfare and was, simply, simple. We spent more time checking in then anything :)
Dr. Miller was patient, confident, well-spoken, and easily explained the surgery to David and me. He wasn't exactly the friendliest guy on the block-- but we don't need a social butterfly, we need an exceptional surgeon! We knew all of what he said, but it's always good to confirm your Google results with an actual doctor, you know. When we met with the neurosurgeon, Dr. Treves, the diagnosis was still officially considered "uncertain" until after the results of the CT Scan. So Dr. Miller was able to talk in certain terms with a bit less "if this, then this" mentality. He did explain some details of the massive surgery, including the little fact that the skull does in fact come off the head (thank you neurosurgeon) and is reshaped by him with disposable plates and screws before being replaced and stitched up. He said that like he was reading a children's book-- you know-- no big deal! Ha! We talked about risks and recovery and our hospital stay. It was a "reality check" in some ways, but in many ways we continue to feel at such peace.
Our big PRAISE for the appointment was that he, too, believes this is a "stand alone" case and is not associated with an underlying syndrome. I might be ready to put that fear to rest :)
Our big PRAYER REQUEST after this appointment is scheduling the surgery. He took pictures of Tucker's head and said he will have a letter sent to our insurance, which typically takes four weeks to totally clear. He said he has only had one denied, and it was easily reversed, but that they still have to pre-certify and that this is the next hurdle to clear. Then, we can schedule, which is another 2-4 weeks out, depending on schedules-- including summer vacations (the Doctors, not ours :) We would really like to have this behind us.
I have a hard time with this because I want God's timing and His will to be accomplished. BUT I also want this surgery to happen before late July, as I go back to work the first of August. So my plan is to be "that mom" and harass the insurance company and simultaneously pray that God's timing is achieved. If I do all I can and God opens doors, we will walk through, but if He doesn't, we know that He is in control and sees "up stream" like we can not. We trust Him. He loves Tucker more than we do. That's such a crazy thought.
Thank you so much for your continued prayers. I was overwhelmed with love and support today in the form of texts, calls, facebook messages, and my sweet students and a few co-workers even stopped to pray with me! While you are praying over Tucker will you pray for our church services on Sunday? That I am able to clearly communicate the Word I believe God has given me? Thank you.
Here are a few pics before I close:
On the Journey,
Stef
Dr. Miller was patient, confident, well-spoken, and easily explained the surgery to David and me. He wasn't exactly the friendliest guy on the block-- but we don't need a social butterfly, we need an exceptional surgeon! We knew all of what he said, but it's always good to confirm your Google results with an actual doctor, you know. When we met with the neurosurgeon, Dr. Treves, the diagnosis was still officially considered "uncertain" until after the results of the CT Scan. So Dr. Miller was able to talk in certain terms with a bit less "if this, then this" mentality. He did explain some details of the massive surgery, including the little fact that the skull does in fact come off the head (thank you neurosurgeon) and is reshaped by him with disposable plates and screws before being replaced and stitched up. He said that like he was reading a children's book-- you know-- no big deal! Ha! We talked about risks and recovery and our hospital stay. It was a "reality check" in some ways, but in many ways we continue to feel at such peace.
Our big PRAISE for the appointment was that he, too, believes this is a "stand alone" case and is not associated with an underlying syndrome. I might be ready to put that fear to rest :)
Our big PRAYER REQUEST after this appointment is scheduling the surgery. He took pictures of Tucker's head and said he will have a letter sent to our insurance, which typically takes four weeks to totally clear. He said he has only had one denied, and it was easily reversed, but that they still have to pre-certify and that this is the next hurdle to clear. Then, we can schedule, which is another 2-4 weeks out, depending on schedules-- including summer vacations (the Doctors, not ours :) We would really like to have this behind us.
I have a hard time with this because I want God's timing and His will to be accomplished. BUT I also want this surgery to happen before late July, as I go back to work the first of August. So my plan is to be "that mom" and harass the insurance company and simultaneously pray that God's timing is achieved. If I do all I can and God opens doors, we will walk through, but if He doesn't, we know that He is in control and sees "up stream" like we can not. We trust Him. He loves Tucker more than we do. That's such a crazy thought.
Thank you so much for your continued prayers. I was overwhelmed with love and support today in the form of texts, calls, facebook messages, and my sweet students and a few co-workers even stopped to pray with me! While you are praying over Tucker will you pray for our church services on Sunday? That I am able to clearly communicate the Word I believe God has given me? Thank you.
Here are a few pics before I close:
 |
| Super Cool. We checked into the floor (after checking in twice and completing a phone interview :) and they gave us this-- like at a restaurant. Then it lit up and vibrated and told us which door to go to. Seriously, ah-mazing. |
 |
| Tired from a big day! |
 | |
| The lobby to this Medical Center. I am so sad that places like this have to exist, but glad it does. |
Stef
Friday, April 20, 2012
Quick FIve
This is going to be a truly "Quick" five. Happy Friday, friends!
1. My day started off wonderfully well when I got on facebook and learned that my friends Tim and Mindy got approved to bring their baby boy, Silas, home. It is just amazing and they have been on a difficult, but faith filled journey that has been so close to my heart-- the type that you just can't get out of your mind and think about and pray for all the time. Read about their adoption here.
2. Another answered prayer-- God has provided a tremendous resource for our family. Through a friend of a friend of a friend (and thanks to this blog) we have met a local mom whose son had the EXACT same surgery as Tucker, with the same surgical groups, at the same hospital, with the same insurance. Her son has the exact same condition as Tucker and she has already provided us with a wealth of helpful information and even some pictures of their journey. I can't wait to meet her and we plan to do lunch or supper sometime soon. Thank you to everyone who has helped us search. We have met several other "answered prayers" through all of you, and we are loving creating a community of people who know about his procedure, have had it before, know about it medically, etc. Katy, my new friend, suggested I check out CranioCareBears. If you want to know more about this condition or care to check it out you can here.
3. Love seeing these two boys interact. My heart truly does overflow with gladness, they are so stinkin awesome. Tucker will not be contained much longer-- he is really rolling around and it is so fun. Dekker likes to have him sit in the Bumbo and be on his level.
4. We are still reeling from the great birthday extravaganza around here. I was pretty laid back and pretty simple about the party last weekend at the park, purposefully so. But I wanted Dekker to have a wonderful party and to have a special time just for him. I am so worried that he is going to feel slighted through all this with Tucker. Which he won't. But I'm paying special care to make sure that he gets moments to feel special and that big things, like his birthday for goodness sake, don't get overlooked! Here he is, a few days after the party, still loving his hat at the breakfast table! More pictures to come.
5. Next week is Week of Ministry at Nebraska Christian College. I am on the "Omaha Team" and we are working with Rebuilding Together Omaha to make some repairs to a home in north Omaha. I am thrilled for the chance to work with the homeowner, this quality organization, my "mentor" from Rebuilding Together, my co-worker Leslie, and the students from NCC. We have a great team of 30 students and have big plans for the week. It will be a week of full time working motherhood, and I am grateful for flexible grandparents and daycare friends and a supportive husband to help bridge the gap from our "usual".
Have a great weekend, everybody!
On the journey,
Stefanie
1. My day started off wonderfully well when I got on facebook and learned that my friends Tim and Mindy got approved to bring their baby boy, Silas, home. It is just amazing and they have been on a difficult, but faith filled journey that has been so close to my heart-- the type that you just can't get out of your mind and think about and pray for all the time. Read about their adoption here.
2. Another answered prayer-- God has provided a tremendous resource for our family. Through a friend of a friend of a friend (and thanks to this blog) we have met a local mom whose son had the EXACT same surgery as Tucker, with the same surgical groups, at the same hospital, with the same insurance. Her son has the exact same condition as Tucker and she has already provided us with a wealth of helpful information and even some pictures of their journey. I can't wait to meet her and we plan to do lunch or supper sometime soon. Thank you to everyone who has helped us search. We have met several other "answered prayers" through all of you, and we are loving creating a community of people who know about his procedure, have had it before, know about it medically, etc. Katy, my new friend, suggested I check out CranioCareBears. If you want to know more about this condition or care to check it out you can here.
3. Love seeing these two boys interact. My heart truly does overflow with gladness, they are so stinkin awesome. Tucker will not be contained much longer-- he is really rolling around and it is so fun. Dekker likes to have him sit in the Bumbo and be on his level.
4. We are still reeling from the great birthday extravaganza around here. I was pretty laid back and pretty simple about the party last weekend at the park, purposefully so. But I wanted Dekker to have a wonderful party and to have a special time just for him. I am so worried that he is going to feel slighted through all this with Tucker. Which he won't. But I'm paying special care to make sure that he gets moments to feel special and that big things, like his birthday for goodness sake, don't get overlooked! Here he is, a few days after the party, still loving his hat at the breakfast table! More pictures to come.
5. Next week is Week of Ministry at Nebraska Christian College. I am on the "Omaha Team" and we are working with Rebuilding Together Omaha to make some repairs to a home in north Omaha. I am thrilled for the chance to work with the homeowner, this quality organization, my "mentor" from Rebuilding Together, my co-worker Leslie, and the students from NCC. We have a great team of 30 students and have big plans for the week. It will be a week of full time working motherhood, and I am grateful for flexible grandparents and daycare friends and a supportive husband to help bridge the gap from our "usual".
Have a great weekend, everybody!
On the journey,
Stefanie
Thursday, April 12, 2012
"God Is Working Upstream"
This week has been precious. I was off for Spring Break last week-- or I worked from home anyway. In the meantime, several of my colleagues here at Nebraska Christian got the prayer request for Tucker. Yesterday my office was buzzing with people stopping in to offer encouragement, to let me know they were praying for us, and even to stop and pray right then and there. I appreciated this so much, and one of the prayers really stuck out to me-- when my colleague prayed that God would be working "upstream" on our behalf. In other words, we are praying that God is taking care of details and has "gone ahead" of us. It will be exciting to see how that plays out.
Today we heard from Dr. Treves, our neurosurgeon's, secretary. She told me that the PA and Dr discussed our May 8th appointment with the Cranial Facial Surgeon and that they believe it is absolutely fine and that there is no need to rush that appointment and/or rush the surgery. They are very comfortable with this timetable. After the appointment on May 8th we will schedule the surgery, and possibly have a few appointments in-between.
Today we give thanks that God is working "upstream" in our life:
* We are thankful that we are not in a position to RUSH into anything, and that the doctors are comfortable that his present condition will not worsen while we wait, or make surgery more complicated.
* We are thankful that I will be able to make it through the semester without taking an absence.
* We are thankful that I have the summer OFF to help Tucker recover, without the stress of trying to balance my responsibilities at work. (God was already working upstream and knew this would be the case when I took this job last year!)
* We are thankful that I will be able to preach at our church, Stonebridge, on Mother's Day. This is the second time I have done this, I am so excited!
* We continue to be thankful for Dave's job-- for his understanding co-workers and work from home capabilities.
* We are thankful for your prayers! We feel confident, less anxious and grateful in ways we would otherwise not be able to. We aren't thrilled to wait, but we know that sometimes God does His best work "while we wait" and we have faith that His timing will be perfect. I am thankful for a period of "wait" to practice giving my anxiety over to Him, trusting Him more, and not "stewing".
Finally, I just have to post this picture. His onesie is especially true today! I stopped in front of a mirror about half an hour ago and I decided that I now officially look like I only got 3 hours of sleep last night (despite my best attempts with coffee, make-up, and Diet Coke)-- which is true thanks to this sweet, cuddly thing who is already getting his third tooth and was up all. night. long :)
On the journey,
Stefanie
Today we heard from Dr. Treves, our neurosurgeon's, secretary. She told me that the PA and Dr discussed our May 8th appointment with the Cranial Facial Surgeon and that they believe it is absolutely fine and that there is no need to rush that appointment and/or rush the surgery. They are very comfortable with this timetable. After the appointment on May 8th we will schedule the surgery, and possibly have a few appointments in-between.
Today we give thanks that God is working "upstream" in our life:
* We are thankful that we are not in a position to RUSH into anything, and that the doctors are comfortable that his present condition will not worsen while we wait, or make surgery more complicated.
* We are thankful that I will be able to make it through the semester without taking an absence.
* We are thankful that I have the summer OFF to help Tucker recover, without the stress of trying to balance my responsibilities at work. (God was already working upstream and knew this would be the case when I took this job last year!)
* We are thankful that I will be able to preach at our church, Stonebridge, on Mother's Day. This is the second time I have done this, I am so excited!
* We continue to be thankful for Dave's job-- for his understanding co-workers and work from home capabilities.
* We are thankful for your prayers! We feel confident, less anxious and grateful in ways we would otherwise not be able to. We aren't thrilled to wait, but we know that sometimes God does His best work "while we wait" and we have faith that His timing will be perfect. I am thankful for a period of "wait" to practice giving my anxiety over to Him, trusting Him more, and not "stewing".
Finally, I just have to post this picture. His onesie is especially true today! I stopped in front of a mirror about half an hour ago and I decided that I now officially look like I only got 3 hours of sleep last night (despite my best attempts with coffee, make-up, and Diet Coke)-- which is true thanks to this sweet, cuddly thing who is already getting his third tooth and was up all. night. long :)
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| The onesie says "My Mommy Is Exhausted!" |
On the journey,
Stefanie
Monday, April 9, 2012
No News Is Good News
As the saying goes, "No News Is Good News." At least that is what we are hoping. We are in the middle of playing phone tag with the Cranial Facial Surgeon and the Neurosurgeon. Apparently, the Cranial Facial guy can't get us in until early May. Which is fine by us, as long as that is okay with the Neurosurgeon (whose staff made the appointment...). There is a bit of a time stamp on this surgery, because after 6 months (May 16th for Tucker) the skull and its bones start to become more and more dense and therefore more difficult to reshape. After 9 months the surgery is much more complex.
So this is our prayer request today-- that the surgeons would communicate and that Tuckers best interest would be in mind. If it's okay to wait, we will wait. If not, we would like an opening with Dr. Miller sooner so we can move forward. By the way, your prayers are fantastic. Every time I get totally overwhelmed, and afraid, and the anxiety comes over me with the weight of an elephant-- I think about how many people are praying for Tucker and I am almost instantly comforted. It is weird but wonderful to actually feel prayers. Thank you seems too weak for such an occasion... but sincerely, thank you.
In other news, we had a great weekend. We went to Aurora where my folks were way too good to us. They showered us with love and encouragement, yummy food, took the "night duty" with the baby, spoiled the boys, and we even took a nap on Saturday. It was great! Dekker's birthday was Saturday, and it was so fun because he "gets it." We told him it was his birthday and then he said we ought to sing "Happy Birthday To You..." and eat cake and open presents. So we did all three. He loved having that song sang to him so much that I think we sang it four times... it was requested in-between "Twinkle Twinkle" and "Jesus Loves Me" at nap and at bedtime. He is such a special, wonderful boy. My heart almost explodes just thinking about him and I am reminded that Jesus, my heavenly father, looks at me and loves me (and you and Dekker and Tucker and _________) even more. I can't imagine that, but that is the kind of love Jesus has for us.
Sunday was a great Easter, complete with ironing and ties and church and an Easter Egg Hunt and Easter baskets. Seriously, present overload for the three year old by the end of the weekend. But, we have had a blast playing with all the new stuff today. I'm so thankful for the message of Easter every single day-- that our Redeemer Lives, has conquered the grave, and that we have hope for ETERNITY because of his sacrifice.
And as the other saying goes... "I should be grading papers!"
On the journey,
Stef
So this is our prayer request today-- that the surgeons would communicate and that Tuckers best interest would be in mind. If it's okay to wait, we will wait. If not, we would like an opening with Dr. Miller sooner so we can move forward. By the way, your prayers are fantastic. Every time I get totally overwhelmed, and afraid, and the anxiety comes over me with the weight of an elephant-- I think about how many people are praying for Tucker and I am almost instantly comforted. It is weird but wonderful to actually feel prayers. Thank you seems too weak for such an occasion... but sincerely, thank you.
In other news, we had a great weekend. We went to Aurora where my folks were way too good to us. They showered us with love and encouragement, yummy food, took the "night duty" with the baby, spoiled the boys, and we even took a nap on Saturday. It was great! Dekker's birthday was Saturday, and it was so fun because he "gets it." We told him it was his birthday and then he said we ought to sing "Happy Birthday To You..." and eat cake and open presents. So we did all three. He loved having that song sang to him so much that I think we sang it four times... it was requested in-between "Twinkle Twinkle" and "Jesus Loves Me" at nap and at bedtime. He is such a special, wonderful boy. My heart almost explodes just thinking about him and I am reminded that Jesus, my heavenly father, looks at me and loves me (and you and Dekker and Tucker and _________) even more. I can't imagine that, but that is the kind of love Jesus has for us.
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| Nana and Grandpa got Dekker a bike. He is not nearly old enough for this (ahem!) but he is sure good at it already! |
Sunday was a great Easter, complete with ironing and ties and church and an Easter Egg Hunt and Easter baskets. Seriously, present overload for the three year old by the end of the weekend. But, we have had a blast playing with all the new stuff today. I'm so thankful for the message of Easter every single day-- that our Redeemer Lives, has conquered the grave, and that we have hope for ETERNITY because of his sacrifice.
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| That's right, I had Dekker in a tie and a polo. Thanks to my sweet friend Jenny for helping me shop at the last minute-- nothing was too "matchy matchy" but it all coordinated. |
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| Baby's First Easter Egg Hunt. |
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| I am only adding this picture so that you all know I did indeed throw caution to the wind and wear pink pants on Easter. They were stylish and appropriate and somehow this is the only picture I have where you can see them! |
On the journey,
Stef
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